HOW SHOULD I LIVE AS AN AD PATIENT?  




Before I knew it, my life became normal.

Now I can live without any suppressive or anti-inflammatory medicines for Atopic Dermatitis(AD).
The only drug I used was emollient to protect hands and fingers against daily jobs and houseworks.
Due to AD, my hand skin is more vulnerable than healthy people and easily.
Hands always make contact with everything including irritants and allergens.They also hurt by frequent washing frequently.
So hand dermatitis easily break out in AD skin like me.
Petroleum jelly ointment is my favorite. I apply it many times just on my scaly hands.

I don't apply anything on my face.
When I was young, I used to make up in the morning, remove at night, with basic moisturizing care every day.
But now I know females do necessarily need neither cosmetics nor moisturizers.
I just wash my face, not everyday with a perticular soap named Atopiko, which is made from camellia oil, containing paraben as an antiseptic.
It is a minor seller but I don't feel inconvenience because recently search and buy is very easy through internet.
Antiseptic do no harm to my skin. I have already treated paraben and Atopico by NAET.
Numerous moisturizers have somewhat additives. We can not avoid all additives in modern world.

I also stopped washing my body every day. It seemed less times are good in winter.
I sill started to feel dry and itchy in November at night in bed on days I had showered in the morning.
In winter, flaky changes are dominant and when I scratch, snowy scales fall down to the floor.

Some dermatologists say that scratching in AD patients is just a bad habit.
I don't think so.
They say because patients often cannot explain the reasons why they scratch there at that time.
But I think they try not to be conscious of the reasons of the behavior, i.e. itching, the negative notion.
So that they can avoid to injure their own skin, forget the unpleasant emotion and stay being positive.
It would be their pathetic protective measures.
In ADs, itches arise from certain immunologically caused skin inflammations whether the inflammations are visible or not. That is AD.
Dermatologists, don't misunderstand patients' distress.

In fact, AD patients are proved to have some sensory hypersensitivities like alloknesis and/or hyperknesis.
The former is to provoke itching by a stimulus which usually does not cause itching.
The latter is to feel a strong itching which usually provoke only a weak itching.
Both are experimentally verified facts of science.
In AD patients' skin, we know another nerve abnormality identified two decades before.
Multiple superficial nerves of skin are extraordinarily extended into epidermis in chronic AD.
AD patients have not only immuno-inflammatory but a neural, not a mental abnormality.

I sill scratch myself often, though the wounds heal naturally within three days.
Pea-sized skin-colored papules or wheals still persistently repeat on my buttock at night, but they are slowly decreasing in severities and numbers.
Uglily I scratch my buttock.
But I can adjust how to scratch my skin suitably from my long carrier as an AD patient:)
to end the itching possibly short and hurt my own skin minimally.
My fingernails catch less scales than before, which tell of the improvement.

Chronic eczema thickened my skin so miserably that I thought normal skin won't return forever.
However, the deep lines of my skin have been healing gradually but steady.
My knees and wrists, which were coarse severely like an elephant, are now quite normal.
Dirty neck and breast are gone and replaced by perfect sleek skin,
though I thought I would have to hide my neck for the rest of my life.
I admire the great restoring ability of human body.
Some day, wrinkles around my cubital fossa will diminish, too.

So I can be more active now.
I really know how it is easy to concentrate if I have no suffering!
I have more energy to spare for not only duty jobs but also preparing for them precisely.
Fortunately, we can search any knowledge, even professional ones, through internet today.
I can study by myself to be a better dermatologist everyday.
Professor Google, I owe you so much:)

As to AD, lots of detailed mechanisms to present with AD has been unveiled recently.
Many cytokines, especially interleukins(ILs) are known now, which are released from various lymphocytes, act complicatedly each other, to other immunologic cells and to skin components.
IL-4, Il-5 and Il-13 increase eosinophyls. B lymphocytes make IgE antibodies.
Among all immune cells including innate lymphoid cells, Type 2 lymphocytes, mast cells and basophils, Il-4 and Il-13 are released and activate many points toward the striking skin inflammation, as well as the destruction of the skin barrier.
Therefore, the new hope of AD medicine, Dupilumub, which inhibits receptors of IL-4/IL-13, established a remarkable clinical outcome.

I wonder if human defeated AD by Dupilumab.
About 30 years before, when I was thrown into the great illness of AD, if there existed this invention, how did the situation changed?
Maybe, most people around me would forced me to use it.
Nevertheless, I, who denied even corticosteroids ointment, would not agree to rely my own destination to the medicine.
Anyway, I would not be favored because of the lack of the sufficient previous anti-inflammatory applications.

A highly technological drug is to come with highly advance adverse effects.
It may give me a miraculous benefit of rapid cure, but the possible adverse effects might shorten my life.
As I am a medical doctor, I understand both light and shade of the modern medicine.
If I didn't have another choice other than depending upon a harsh drug, I would be terrible in my anguish...

In my first year of dermatologic carrier, I applied corticosteroids to whole skin of my patient of erythroderma (whole body erythema from chronic eczema) everyday and he recovered well.
However, after he discharged when I saw him again, his skin condition was already back where he hospitalized.
Just this one episode taught me both efficacy and limit of corticosteroids.
Everything started then.
I live as a dermatologist, but at the same time I am an alternative treatment practitioner involving chiropractic and Nambudripad's allergy elimination technique(NAET).
It sure is an irregular course, though I don't have any regret at my life.

I wish every patients can choose his/her own choice and live whole life with no regret.
What treatment do you want to receive? How do you want to live?
The answer will always be inside of yourself.
Be natural and be happy.
I'd like to cooperate with such patients, you, to aid your wellness.


written in 2020.12.(translated in 2022.6)





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