I'm sick and unable to work for a long time.
Most people who have heard of me want to give me some advice.
Maybe I should thank for their concerns, but to be honest, I dislike them.
They tell me, "Aren't there some good methods to cure?"
They start to talk about any remedies which have once said to be effective; first, corticosteroid, antihistamine, moisturizer, tacrolimus, and famous dermatologists' guidance.
Next, when they see me disagree, they propose Chinese medicine.
Then special remedies like thalassotherapy, ultraviolet ray, furthermore, any alternative therapy like suppliments.
I hate this talk.
I have already collected fair informations of most of AD therapies, checked into them, considered possible good/adverse effects, and determined to do or not to do the thereapies myself.
Nevertheless, to my grief, most of their advices are mere fragments of smattering informations.
I understand it's only natural they are not as serious as me, since it's my problem, not theirs. But I think one should not suggest something irresponsibley to others what he/she doesn't know well. Now that I'm a doctor, someone even ask me the effectiveness of what he/she recommends.
Stop advising me as a know-it-all.
Healthy people, including doctors may be insensitive to sick ones because the former think differently from the latter. Patients who are in the middle of diseases may be more close to essentials of the diseases than even doctors.
Although some therapy may improve disease symptoms, it may worsen them as well. I think that is as a matter of course. AD patients' weak skin get worse easily, recover slowly.
In spite of that truth, I am frequently surprised that the recommending people does not assume adverse results.
If the recommended therapy aggravete my symptoms,
who take responsibility? -
The recommender will not suffer. It's me. It's the patient to suffer.
Though, they often become very unpleasant at my refusal.
When I refuse, I try to explain my thinking to reach the decision as understandably as I can. The effort is rather tiresome, besides most of the time, in vain.
They understand only that I will not agree. They won't accept my opinion, and just wonder, "Why this woman is so obstinate despite of all my good will for her?"
Then they judge me to be a lazy person who is not willing to try to be better, or a depressive patient who has been beaten and become apathetic, or an eccentric one distorted by agony of the sickness.
In my opinion, most Japanese people around me seem to demands every adult to work constantly, every child to go to school every day as a member of society. They don't accept long-time moratorium.
Since Japanese tend to prefer homogeneity, they aren't good at coexisting with sick people, disabled people, or other any type of people who is deviating from stereotype of social men. They seems to feel unstable to see such people like me.
As a result, they request me to get healthy look early, like working every day, although they have little concern about whether my body is truely healty or not. Sometimes it looks to me they hope my healing in aid of their relief.
Their request is hard to me.
I myself do urge the cure and recovery of ordinary life.
Moreover, I also know the difficulty of getting the cure.
And of course I'm not ignorant of things what my sickness trouble them. I feel sorry about that.
So, please leave me alone.
Don't propose me some new therapies. The talk is too annoying for a patient for a chat.